Yesterday, Ehlers-Danlos Support UK put out a post which was probably intended to be helpful and supportive, but which received an almost instant backlash from an awful lot of miffed EDS sufferers.
The post was saying that, whilst expert medical care is vital for EDS patients, there's also an awful lot that we can do ourselves to manage our condition. You can read it yourself:
Well, you could, before it got deleted - but fortunately I have a screen shot! Here's what it said: