Wednesday, 9 January 2019

I've got a feeling... 🎵 (part 1)

** edit: Click here for a webpage that's good for explaining some of the stuff below. I could rewrite it in my own words, but it's probably easier and more accurate just to redirect you! **

My legs are weird. There are all sorts of things going on in my body, so it's really hard to understand the effect these things have on my legs. They can do certain things, but not others, which is a bit of an enigma which stumps most medics. I wanted to share an analogy I've thought of that explains how I feel about what I feel.
Silly legs

First, though, I wanted to look a bit at why I and others with EDS have these problems - why is it that I have a bit of control over my legs, but not as much as I'd like? Why is it that I can feel pain from within, but not from without? Why can't I feel things that touch my legs, and why can't I feel where they are in space? I have to admit, I haven't found all the answers. I think it'll take a fair bit more research, not only from me but from the scientists out there!

Thursday, 3 January 2019

Number 5 of 'Five Things I'm Proud of in 2018' (These fab folk)

Throughout my childhood, the only film I ever cried at was 'A Little Princess' (which is truly traumatic at any age!). These days, though, I'm completely soppy and whenever I'm happy or proud of someone - even if it isn't someone I know! - I'm in floods!

So, here are some of the people that have made me cry, in a good way, this year. I've had to use some generalisations/fake names for safeguarding reasons and/or to spare certain people embarrassment!

Tuesday, 1 January 2019

Number 4 of 'Five Things I'm Proud of in 2018' (Practising what I preach - a bit...)

I work in a primary school with individuals or small groups of children who, for myriad reasons, need a bit more support than can be offered in the classroom. Whilst every child has a different story, the vast majority need some help with managing behaviour and feelings.
I just caught the second half of this film. It's brilliant!
One of the most important things I've learned is that children know that adults aren't infallible. They know we're not perfect, and they have a keen nose for hypocrisy! All adults who work in a school should model behaviour to which their charges can aspire, but this doesn't mean they need to feign perfection. Kids see through it straight away and they have no respect or patience for it.