|All the rest of my photos are going to be cheery after this one, even if they're not completely appropriate!|
|and if I'm not miserable about Christmas then Rosie certainly shouldn't be!|
|So hungry you could eat a horse...|
|Edward, my brother, wearing a cushion on his head, with a rather bemused Rosie.|
- Medication. Have you got enough?! Have you got more than enough? Have you got every type of medication you think you could need? The key to this is preparation. If you haven't already done it, act NOW to get as much medication as you can.
- Have you got enough safe food and drinks? Is there anything you have to ensure you have in because running out of it would cause you major problems? Make sure you buy extra when you do your grocery shopping.
- Most spoonies don't have a huge disposable income, so making/writing/sending cards and presents is a good idea, but takes a lot of prior planning.
- Christmas shopping has to be done in stages. If you, as a non-spoonie, feel exhausted after a busy day out shopping, imagine how it feels when you start out feeling that bad (every day). If you want to go out and buy presents for people, you need to accept that it will take multiple trips!
- If you're going to stay with someone else (family or friends), let them know what you think you're capable of. If they know in advance that your energy is very limited, they will know not to expect you to play games all night, or to spend hours peeling sprouts.
- Since Christmas does sap your energy a bit, it might be a good idea to sort some of the smaller decisions out early. For example, pick out some outfits and put them aside so that over the busy, tiring days, that's one less thing to think about.
- Keep going out if you are able, even if bundled up and not under your own steam. A bit of fresh air around the gills works wonders.
- Christmas parties - nightmare! I'm only going to one (maybe two at a push), which would be one more than last year. Remember that parties are meant to be things that make you feel happy and feel better about yourself. If you are dreading it because you know it will make you feel dreadful, then don't go! It isn't compulsory! And if it is compulsory, then it doesn't sound much like a party...
- Decorate. I love Christmas really. I'm not a grouch or a Scrooge; I love it as a religious festival and I love seeing family and friends more, having special food, giving and receiving presents, and so on. Most of all, I love the decorations. I like the lights, the glitter, the tasteful and tasteless decorations! Being a spoonie doesn't mean I can't enjoy a bit of glam. This year I will have wonderfully tinselly crutches and wheelchairs. I want fairy lights on my chairs. I'm going to look like the personification of Christmas. The fact that I can't stay awaake for much of it is irrelevant!